Feeling Bad

Do you ever feel like just throwing your hands in the air and screaming ” YOU WIN!!!!” ? That is pretty much where I am at the moment.

I am so tired. Exhausted does not even begin to describe how tired I am. I need a break. When I say a break, I mean that across the damn board. A break from absolutely everything. A permanent vacation from the real world. A break in finances so I can have a break from the real world. A break in my health. You get the idea.

Somewhere around seven years ago, I started feeling bad. Little things. Things I really couldn’t explain, nor could I find good descriptives of how I felt. Finally, I just started telling my husband and my doctor that I have bad blood. That is exactly how it felt. I swear I could FEEL my blood trying its hardest to push through my body. Trying so hard it made everything hurt. My biggest complaint at the time was my left leg ached so bad I would just sit and cry. I felt like I needed it rubbed, so I would ask my husband to rub it and it took all I had to not come up swinging and shouting. It hurt to just touch it. This wasn’t all the time, it came and went in spells. I had all kinds of crazy tests ran. One they actually hooked me up to some machine and inserted needles that shocked my nerves. Talk about fun. And, of course nothing. I was out of my mind.

Life went on and I learned to just deal with whatever the day decided to bring.

September 23, 2012 I decided I didn’t want to smoke anymore. Quit cold turkey. That, is shear hell, but effective. That journey is a whole different story.

About six, maybe eight months later I had routine blood work. I got a call to come in and talk to my doctor. I figured she wanted to adjust my thyroid medicine. I go in, sit down and she tells me my platelet numbers are sky high. She said they had always been slightly elevated, but that is normal for a smoker. Now, that I am no longer a smoker she started going over my numbers over the last two years and the numbers have been going up and up, and have not gone down since I had quit smoking. She had no idea what was going on, so she sent me to a blood specialist. I was over the top scared to death, because of course, I had been googling all of this. Blood specialist said there was nothing wrong with my blood, no cancer, nothing that he could help me with. He said my problem is that my bone marrow makes too many platelets which is making everything else out of control. He sends me to another doctor who sends me to another doctor, and eventually I end up at a Rheumatologist. Well, he takes one look at all my tests results and tells me I have CREST Syndrome, which is a whole bunch of disorders wrapped up into one nice little package.

It falls under Auto Immune, rheumatic, chronic, esophageal, lung, and heart diseases. And, I am sure I probably left something out. I have bad days, very bad days, and occasionally good days. Life is REALLY great when I have more then one good day in the same week.

When I was first diagnosed we tried a few different medications to try and help with the raynauds and others to help with the pain and inflammation. I hated the side effects of all of them. I refuse to take any medications for any of these things, except the acid reflux. I do take an over the counter for that. There are some days when I swear the acid reflux is going crush me to death. It has been really bad lately. EVERYTHING has been really bad lately. But, I have to participate in the real world, so I have to force myself out of bed and into life.

Over the last six years I have been on a weight gain, weight loss roller coaster. I have tried absolutely everything. I start to lose some pounds and my body starts laughing at me., and sends me a week long present. INFLAMMATION! It is so miserable. I mean it makes it hard to bend my fingers or toes, it just makes me miserable. To make matters worse that is when the bad blood episodes hit. I cry alot. In the dark where no one sees me. My family does not understand. To them, I ALWAYS feel bad, So, I try as hard as I can not to complain, or let them know how bad I feel. Lately, I just can not stand being in my own skin.

I found out a few weeks ago, I have mono. YAY! Thank you God of health. My doctor told me to go home and go to bed for a month. HA!!! As if I could REALLY do that. If my insurance would pay for it, I would pack us all up and move to the beach, rest there until the day I die. But, that is never going to happen, and I HAVE to go to work. I have been so inflammed for about three weeks now. I can not begin to tell you how bad I feel. And because I like to add insult to injury, I have been trying so hard to lose weight. Damn scale is going to get a bullet in it REALLY soon!!

I have researched food and exercise and auto immune and everything else. There is SOOOO much information out there, sifting through it all is a nightmare in itself. There is a diet protocal for persons with an auto immune disorder. Yet, when you search for that it isn’t a universal diet or way of eating, every other doctor has a different idea on what you should eat and what you shouldn’t. I paid for a nutritionist for three months, did not help. So, I have come to the conclusion I am in this all by myself. I suppose it is going to be a process of trial and error, and elimination. Which, is probably going to take forever, but hopefully I will make progress. Progress would be, lose weight and feel better. The part that scares me is exercise. UGH. I know nothing about weights, and I am not hiring a trainer.

So, I suppose much like everything else, I am in this alone. If you have read all of this, and you have suggestions, or advice, please pass it to me, I am game to try just about anything at this point. If you don’t have any suggestions or answers, share this, maybe someone you know somewhere does! And, I will try to remember to document my progress or failure here!

Peace!

Manuals for the Living

My brain sometimes thinks sideways and upside down, and as crazy as it may sound backwards periodically. Most generally, my husband and I have completely opposite views. His is more in a straight tidy well organized line, with labels and tabs and an index Incase you get lost. Baffles my mind to bits. My line zig zags circles around and around comes back this way then back that way, you get the idea, and I guarantee you I drive him insane. I think he is so hard to read and figure out and that I am an open book, he sees it the other way around.

So, my mind gets to wandering. What if we all came with a manual when we were born. What if. Let’s say that manual covered absolutely everything about you and your life. In general terms. This manual covers everything from how you were going to be birthed to how you were going to die and everything in between. Again, in generalizations, like you would reach the height of 5’2 before you reach adulthood, but will shrink to the height of 4’8 before your death. With no specifics such as you will reach 5’2 in the 5th grade and appear to be an Amazon woman towering above all your classmates, however; they will all pass you up one day. And you will have 3.2 children before the age of 40 but no more specifics, especially what the heck the .2 is. You will be born in the back seat of a car ( which I was not) and you will die in the back seat of a car. No specifics again, just general information. You will obtain x amount of schooling. You get the idea. All generalized info. With some added things such as say, you will be deathly allergic to chocolate. Just enough information to not be enough information.

Would you want to have this manual for any reason? Would you want it to help you with the early years of being a new parent? If you did accept the manual to help you with the early years with your babies, would you want to pass the manual on to them as they got older, if so, when would you pass it on to them? If you made the decision to not pass it on to them, and they learn upon having their own child that there is such a manual; what would you say to them then?

I have thought and thought about this. I have known several people who have committed suicide. Had they had manuals that stated their lives would end by their own hand, would it have changed things? Would they have taken their lives sooner? Or never?

There are times I think I wish I could go back to a certain time in my life and know what I know now. But if I could do that how would it make my life different now? My guess is, it would change it but not for the better. I know someone who was constantly trying to find a way to get rich, had a law suit against a former employer, netted him far less then he had hoped. Had another law suit against a driver who rear ended him, still had to work. Then one day while out on his Harley a little old lady crossed the Center line and struck him. He fought for his life. Lost a leg. Mangled him up really bad. Was in the hospital forever it seemed then rehab, and still had troubles today with his prosthetic leg. But, he’s a millionaire-ish now. If he’d have had a manual, how would that have changed his look at life?

I’ve learned that we go through the crazy things and the bad things and even the good things to better ourselves. Learn lessons from those things. Move forward. If we have a manual that guides us, where would we really end up? Better? Worse?

I’m good with who I am now. I’m not perfect, but I’m a better person then I use to be. And I went through a lot of shit to get here. Not all bad shit. And not all someone else’s shit, I stirred just as much as anyone else did. So I think for me, I wouldn’t want that manual. Because it would make me afraid. Afraid to live each day to it’s fullest. Afraid to take chances when maybe I can’t really afford them. Afraid to laugh or afraid to cry. And that’s certainly not living.

So, I’m gonna keep on living each day as God gives it to me, thanking him all the way. And I’m going to keep screwing up and praying He helps me through it!!!

✌🏼😘

It’s What We Do

I want to take this time to talk to you about Real Housewives. By REAL, I mean REAL.

We all know all the different shows from all the different large cities…. ” Real Housewives of……” I loved those shows. Was addicted to those shows. Oh my GAWD I wanted to be IN one of those shows. I watched every single one of them, back when I was a Stay -At-Home Mom. I got sucked in by all the glamor and glitz. I did not know a soul, housewife, working mom, stay-at-home mom NO ONE who even came close to anyone of these woman. At the time, I lived in a trailer. YUP, Mobile HOME, had wheels on the bottom. I always thought ” you want housewife, come to the 47666 and follow me around, our shopping sprees takes us to Goodwill!”

I am not going to talk anymore about those house wives because someone somewhere will certainly get their feelings hurt and I have nothing anyone else would want to sue me for!

In my life, I work full time outside of our home. I take care of all the bills, finances, housework, kids things, mowing, pretty much everything except working on the appliances and vehicles; which usually I call someone to come and do. My husband, he just gets to go to work and that is it! And I am jealous of that sometimes. I will tell you, I screw up our account at least twice a year. And he gets so mad at me each time I swear he is going to divorce me. He thinks I am spending large amounts on STUFF when what it always comes down to is, I got lazy or sick or behind or all the above and stopped keeping track of what was going where who was spending what on what and why and just watched the balance until it got to the OH SHIT level. It makes me sick to my stomach just thinking about it now, but it is going to happen again, I guarantee you. He refuses to help me, says I won’t learn how to do it and do it right until I keep doing it. What sense does that even make? UGH!

I can not tell you how many pizzas I have burned because I am tired and get side tracked when I go into the other room to fold laundry and throw it on everyone’s beds. I can set the timer on the stove and swear it’s the dryer yelling at me and at that moment I just do not care that the clothes are dried. Then finally someone yells ” WHAT’s ON FIRE!” In our first few years in our house we had ADT. I can only imagine how many bets went on when our house came up on screen as having a fire. Our towns 911 dispatch operator would call me personally to see if there really was a fire or if it was just me cooking again. My husband was mortified by it. I thought it was funny. I mean why in the hell did they put the smoke alarm 3 feet from the stove in the first place.

I can make a Sears service man cry. At one point he threw up his hands and said ” I give up” at which point he declared our washing machine ” uneconomical to repair”; and Sears issued us a full refund on the machine, PLUS what we paid for the warranty. The machine in question was only six months old and I had somehow managed to blow apart the concrete arm that held the tub in place. True story. That was six years ago. In that six years we have gone through three more washers. My husband and the lady who owns our local Sears Home Store went round and round about my abilities to operate the machines correctly. Her loss, we now purchase our appliances from Menards.

I think about all the things that I have gotten myself into, and out of. From the things listed above to ruined laundry, lost pets, broken hearts, skinned knees, first days of kindergarten to graduation days, science projects gone wrong to better grades now then I got when I was in school. There are days I am so tired I don’t know if I should cry, laugh or scream. I have many days when I REALLY want a margarita. Then I think of all the butterfly kisses, stomps in the mud puddles, laughs until we cried, sleepless nights, early mornings, drives through the country until a very sleepy someone falls asleep…………. Then I think of all the times I wished time away and I cry. My soul cries. My heart cries.

All the things I wish I could undo or take back, erase and move on from. It’s all part of being a mom, a wife, a housewife, mother, disciplinarian, cook, referee, boo boo kisser, laundry sorter, dishwasher, hair fixer, tear drop catcher……how ever you want to classify me, I gladly accept the job. Yes, there are still going to be days I wish I lived at the beach, I am always going to want to live at the beach, but I want to drag all my little bugs with me. I love my life, however you categorize it. And the more I go over all those little things, and big things we do and will continue to do as REAL HOUSEWIVES, I wouldn’t trade any of it to be big and fancy and controversial, ( which for some reason reminds me of when Chloe and I went into a second hand store a while back and she said to me, ” isn’t this for poor people?” and we both looked up and saw a purse with a huge price sign that said $700 USED……she looked at me and we both laughed…..who in their right minds pays $700 for a used purse????) So, I will probably keep on complaining at times, bragging at times, and planning a life I will never have on a beautiful tropical island, but I love being the housewife for the husband and children, and house I have.

 

 

 

Wandering Mind at Graduation

This past weekend our youngest son graduated high school. It truly seemed so surreal. I was trying to remember how long had it been since I was sitting down on that floor with butterflies in my stomach. My niece apparently had the same thought because she turned around and said ” can you believe it has been 4 years since I graduated?” my answer to her was ” try 29 years”, and as I said it and heard it, it seemed impossible it had been that long.

I sat there listening to the speeches given by these children about life and it’s lessons and not taking the opportunity to seize every minute of life. And I thought to myself ” how in the hell do they know this”. And then my mind began to wander, did my class mates give the same speeches? Did I sit down on the floor and stare at them with no regard to what they were actually saying, let alone actually listening to it? Was my son taking in any of their words or was he doing the same as I had done, as I was doing at that moment?

I seriously wanted to stand up and shout LISTEN TO THEM!!!!!! Even though there was no way they knew the things they were saying were to be true, unless they had asked for life advice from close adults or googled speeches. One young man did in fact admit he googled ” Valedictorian Speeches”, his young man ended his speech with a prayer. I thought for sure the ceiling was going to cave in, but much to my surprise when he finished there was a load roaring echo of AMENs, followed by even louder claps. Very Cool!

Still, as I sat there and listened to more speeches, I wandered where time had gone. I asked myself why I hadn’t tried. Why I hadn’t taken any chances. Why had I been so scared to just take the first step regardless of whether it was followed by failure? I had no answer. I still have no answer. Then I began to wander, will my son settle into the same rut, the rut that just gets you by in life? Will he dare to dance on the edge of the limb and take that plunge? At that moment I think is when I cried. I heard them call his name, and hand him his diploma. And all those fears a mother has for her children were right there on my shoulder taunting me.

What I want for him is for him to always be happy. What I wish for him is that he lives life. Truly lives it. Not just survive in it. Not just go through the motions. Not just make everything alright from what you have. But live life everyday. In every way. Grab ahold of it and ride it’s tail in the wind until you make it to the point of guiding it. I wish we all would have done that.

I can’t be sure where he will go and how he will get there, this is his time, his way. I will pray each and everyday that his way never leaves him lost, lonely, scared, sick or broken. If by chance it does, I will continue to do all I can, and all he allows me to do to pick him back up again.

No, No, NO, You Got It All Wrong

Surely by now most of you know of the recording where some people hear Laurel and others hear Yanny. Personally, I heard Yanny.

That got me thinking. About song lyrics. I spent an hour searching and laughing so hard I was in tears.

I don’t know why my brain thought of song lyrics, it’s on its own track most days. First thing that came to my mind was “Wrapped up like a douche when you’re rover in the night” made me laugh and laugh. I can’t tell you how many millions of times both my husband and I belted that line out like we knew what the hell we were singing. I mean does that even make sense? No. Didn’t have to we had fun singing it. Actual lyrics are ” Blinded by the light revved up like a deuce another runner in the night” Makes about as much sense as what we were singing.

Then it made me think of ” I was Jack and you were dyingggggg” First time I heard that song I was thinking why in the hell is she dying?? Then I had to laugh at myself. I mean Duh. JCM’s Jack and Diane beat is clearly playing in the back ground so ” I was Jack and you were Diane” makes way more sense but go ahead listen to it and tell me you don’t hear him saying ” I was Jack and you were dyinggggg”

So, I got to googling. This is where the real laughter came in.

Apparently most people think Elton John wants Tony Danza to hold him closer ….. Hold me closer Tony Danza is actually ” Hold me closer Tiny Dancer” which I hear the correct lyrics in that song, one of my all time favorites except for the Tim McGraw version, not a fan of that one.

See that girl, watch her scream, kicking the dancing queen which is actually ” See that girl watch that scene, dig in the dancing queen”

Now, if you aren’t singing these as we go along, just stop reading now and go somewhere else, you are no fun and probably not laughing either.

Sweet dreams are made of cheese 😂😂

I am a big Queen fan. Love Freddie. And I am here to tell you some of his songs are out there in terms of the wording and the story line, not gonna lie I get most of them all wrong but this one had me rolling. Kicking your car all over the place we will we will… actual ( which makes just as much sense ) ” kicking your can all over the place..”

And……. I Like Big Butts in a Can of Limes!!!! 😂😂😂😂

So, tell me your favorite misheard lyric.

✌🏼 Jules

Sports Bra Dance

Whomever designed the original sports bra actually meant for it to be a torture device. It’s the most miserable thing to put on and even more miserable to attempt to take off, especially if you really did work out.

So this weekend I was trying to put mine on. 🤨 You see I said ” trying”, right? First let me tell you about my Sports Bra. I got it from Victoria Secrets a couple of years ago. Yes, I said VS. No, I do not have itty bitty tittys that only need band aids. This is the absolute BEST one I have ever had. A HUGE selling point was it zips up the front! Another it comes in bra sizes and finally it actually holds my sisters in place! Very very little bounce! I love this bra.

BBUT, this weekend I was having major issues. I’m in our bedroom half naked trying over and over and over to get this damn thing zipped. I’ve pulled and I’ve pushed and I’ve stuffed like you wouldn’t believe. I’ve jiggled and wiggled and tried stuffing again. I’ve turned side ways and the other side ways and half way around and tried stuffing AGAIN! I’ve preformed a few off balanced moves and jiggled some more. The damn zipper just will not cooperate. Won’t budge. And I’m mad.

At this point my husband walks in. He says ” what in the hell are you doing?” 😳 ” Well, I am trying to put this damn bra on and it refuses to zip!” So, he thinks he can help. ” let me try” he says. Sure why not at this point whatever works! He tries and tries and then says ” well stuff them in some more” So, I try to stuff. Which I have to tell you, that was not the problem but for some reason both of us thought if I SMASH them in, the zipper will work. I don’t know why this was part of our thought process but it was. When that didn’t work he says ” well you are just going to have to take it off zip it up and then put it on” To which I said ” are you crazy? The whole reason I bought this was so I didn’t HAVE to put this on over my head!” He tells me I need to just buy a new one. Sure that’s a great idea but that doesn’t help me NOW! He then asks ” well are you going to work out NOW?” ” No, I’m not going to work out NOW” he then asks ” well why are you putting it on?” ” because I’m going out to work in the yard and I want to wear this ( holding up a cool clearance find at the Nike outlet – a tankish kind of top) and I can’t wear my regular bra with it that would look dumb” he said a few choice cuss words then said ” ok I’m going to hold this together and you pull” 😬 GOT IT! WooHoo! WooHoo! Team effort to get the sports bra on! His parting words to me were ” you’re something else” 😂😘

Yes, yes I am and he wouldn’t trade me or my Sports Bra Dance for anything else……. I don’t think !

✌🏼 Julesb6a81c34c848b09c79697df3d2cee22c

I Got Loopy

We aren’t ones that go out on the town and cut loose. Or, I suppose I should say we don’t do it very often. I am a people person. My husband is not. I’m happy to mingle and socialize or even just stand back and observe. Oh how I LOVE to people watch! My husband would rather tv watch. I am more comfortable dressed up, which to me is anything that is not scrubs, jeans, sweats or sneakers. My husband is Levi’s and sneakers.

I could go on and on about how opposite we are, but I’ll save that for a different post.

Before I get to what I really want to tell you about, I need to give you some of our back story. We have been married for almost 21 years. I come from a family full of alcoholics and drug addicts. MOST are clean and have been for many years. Because I grew up smack dab in the middle of crazy insane full blown partying at every family get together, I put myself up on this pedal stool because I was going to be better then them. Shew. I’ll tell you, all these years later it breaks my heart to say that. Now my husband, totally opposite upbringing. His dad was a cop in LA way back in the 70’s. My husband is straight out of Compton before Compton was gang territory ( or so I’m told) His parents loaded up the family and moved all the way over here to good ol Indiana because his dad seen the changes coming. So, Southern Cali surfer dude transplanted to the corn fields of the Midwest. Snooty. As time passes and so does life, my husband becomes a drug addict. Yup. I fell off that pedal stool so hard. But, where I was going with all of that, before I ever fell I refused to drink. I knew. I felt it in my blood. I wouldn’t allow myself to drink scared I wouldn’t quit. No I never became an alcoholic or drug addict. My husband and I had been married for nearly 8 maybe 9 years and he had never known me to drink so we had a New Years Eve Party and I drank and drank and drank 🤮 was not pretty. Crazy I tell you. So, here we are years later and let me tell you I love margaritas and I love tequila! He did all his crazy shit while I was raising our kids I think he’s ready to be an old man now. Me, I’ve raised my kids now I want to be carefree and crazy!!! 🤷‍♀️

Last October we went to Nashville for our 20th wedding anniversary. His brother and his wife surprised us at Sambucas ( which if you are ever in Nashville make a reservation and have dinner there OMG its insanely delicious!!) After dinner they took us over to Broadway, I was mesmerized. We live in a very small rural farm town on a river this is something I had never experienced. WoW!!! LOVED every bar we went into, every thing we saw, I was so in awe of everything and wandered why in the hell no one ever told me about this place. We made our way to Nudies Honky Talk were we propped ourselves up on a stool on the second floor balcony got more drunk and people watched. There was a bachelor and his party having the time of their life down on the dance floor, next thing you know there I was right in the middle dancing away and so was my sister in law. SO.MUCH.FUN. Our husbands drug us out of there 30 minutes before last call. Jerks. We found a corner hot dog vendor and ended our night with a dog and an Uber ride. The next night we had tickets to Kid Rocks Fish Fry , I love Kid like no other but 1. it’s not really a fish fry and 2. He ain’t got nothing on Nudies. I couldn’t talk my husband into a shirt from Nudies and I was broke after bar #2 so no shirt.

Fast forward to April 13 of this year and back to Nashville with same brother and SIL along with my husbands 2 sisters and their spouses. They all stayed at a fancy Marriott ( I wanted lots of tequila and a T-shirt from Nudies so we got a hotel over by the shell mart😬) TWO nights of downtown Nashville! Both nights ending up at Nudies Honky Tonk. I am telling you I love that bar!!! If that bar was in say Key West I would just pack up and move now. Love it. We had the best time. What I need is a job that pays me to travel and go to these places!!! ❤️❤️ I cant talk him into going all the time like I’d love to. Seems now that most all of the kids are grown ( youngest just turning 13 next month the rest are all adults) he’s out frown letting his ambitions fly to the wind. I get it, do not want anything to ever mess with his sobriety, I just want to live a little before I die. So, all of this I am telling you is because I also wanted to tell you I got me a damn Nudies shirt that night. Yup. I wasn’t leaving until I got one. We compromised I wanted a T-shirt he said it had to be a tank ( and yet again I spent all my cash on tequila shots) I knew what his thinking was ” let her get a tank she will never wear it out of the house” ( I try to be respectable looking most of the time so I don’t let body parts hang out at Wal Mart) I got the tank- a red tank. And damn it if winter didn’t hang around here forever and 9 full moons! Left work tonight at 5:30 put the top down on my car came home and do you know what I put on???? Hell Yeah I did!!